Participant Spotlight: Madelyn Humaney
For Madelyn and her husband Andy, the diagnosis of Alzheimer's disease was difficult but not unexpected. With a family history of the condition, including Madelyn's father and three older sisters, they knew the possibility was there. It was enough to prompt her to seek an evaluation at the renowned Memory and Aging Program at Butler Hospital in Rhode Island when she was about 70 years old.
The program provided a comprehensive baseline assessment, which would prove invaluable five years later when Madelyn began showing noticeable memory issues. With detailed records for comparison, the Butler team could track her cognitive changes over time. The findings led Madelyn to pursue involvement in the program's research studies.
Over the past year, Madelyn has participated in an 8-month clinical trial examining whether a medication could reduce brain inflammation and show benefits for Alzheimer's patients. "It was a terrific experience," Madelyn shared. "I got to meet others dealing with similar issues, ask questions openly, and never felt embarrassed or worried. I always felt calm."
Her husband Andy noted that while they don't have high hopes for an imminent cure from any single study, contributing data is vitally important for advancing long-term Alzheimer's research and care. "This is a very long process and there's a long way to go," he said. "If we can add to the database by participating, that's our goal."
Beyond research, the Memory and Aging Program has provided invaluable education and support. "They told me what I needed to do, what I was going to go through," said Madelyn. "There weren't any secrets and that was very supportive."
The couple has taken the program's guidance to heart by being open about Madelyn's condition with loved ones. As Andy puts it, they strive to "embrace the Alzheimer's" as a team. Madelyn echoes this pragmatic outlook: "You're going to take care of each other. Have a laugh once in a while. You can't weep about it all the time."
Madelyn's gradual transition has required her to relinquish responsibilities like cooking and sewing that she once enjoyed. But her primary focus is on spending time with her two grown children, and two young grandchildren, and supporting Andy, her spouse of nearly 50 years. "The one I probably worry most about is Andy," she admits. "I just can't imagine I could have a better partner."
In turn, Andy is in awe of his wife's resilience. "Neither one of us is happy about this," he said. "But we try to face the reality of it and make sure those close to us understand what's happening."
With Madelyn's caregiving duties now his charge, Andy strives to provide his wife with a caring, peaceful environment. The couple feels profoundly grateful for the life they've built. "Time is getting shorter for me, and I know that," Madelyn said. "I'm just grateful for what I have."
The Memory and Aging Program has been an invaluable source of community, guidance, and hope in facing Alzheimer's together. For Madelyn and Andy, it's about embracing life's journey with equal determination and affection through the challenges still ahead.
Disclaimer: The content in this blog is for informational and educational purposes only and should not serve as medical advice, consultation, or diagnosis. If you have a medical concern, please consult your healthcare provider, or seek immediate medical treatment.