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Beyond Translation: The Memory and Aging Program's Culturally Tailored Approach to Raising Alzheimer's Awareness in the Hispanic Community

Alzheimer's disease is a growing concern for millions, but did you know that certain populations are at a significantly higher risk? Recent studies reveal that Hispanic individuals are 1.5 times more likely to develop Alzheimer's compared to non-Hispanic white individuals. This stark health disparity requires urgent awareness, education, and action to address the challenges ahead. The Memory and Aging Program at Butler Hospital (MAP) and its partners across Rhode Island are taking steps to address this pressing issue through comprehensive Spanish-language outreach initiatives.

Bringing Brain Health Resources to Latinx Communities

MAP launched a multi-faceted approach to bring vital brain health information and resources directly to the heart of Latinx communities. By partnering with local health clinics and community centers, MAP offers memory screenings, educational programs on brain health and aging, and research opportunities to historically marginalized communities.

One of the program's most innovative initiatives is the Brain Health Room, established in collaboration with Progreso Latino. This unique space, made possible through the ADNI-3 study, allows community members to learn about the 8 Pillars of Brain Health and actively engage with these concepts through a Senior Program.

Expanding Spanish-Language Capabilities 

Recognizing the importance of language accessibility, MAP significantly expanded its Spanish-language capabilities. In 2023, the program welcomed new studies and staff members to enhance its ability to conduct observational studies in Spanish.  Additionally, under a diversity grant, MAP now offers abbreviated neuropsychological screenings in English and Spanish, providing participants with results and recommendations in their preferred language. The goal is to continue to expand this service to more organizations.

MAP's commitment to language inclusivity extends to all aspects of its outreach. Presentations are consistently offered in English and Spanish, ensuring vital information reaches a broader audience. This approach was informed by a comprehensive community-based survey conducted in 2021, which revealed language was a significant barrier for many in the Latinx community. The survey highlighted a preference for receiving Alzheimer's disease-related education and research participation materials in Spanish, even among bilingual individuals.

Collaborating for Cultural Relevance

Cultural relevance is at the forefront of MAP's outreach strategy. The program collaborates closely with community partners to create presentations, flyers, and brochures that resonate with the specific needs and values of the Hispanic community. MAP also makes a concerted effort to participate in events that hold special significance for its partners, whether cultural festivals, community health fairs, or multi-generational celebrations.

Expanding Translation Capabilities for the Future 

Looking to the future, MAP is poised to expand its reach even further. Butler Hospital recently implemented an advanced translation system encompassing a wider range of languages and offers improved translations. This enhancement is expected to significantly increase the number of individuals MAP can serve, breaking down language barriers and making critical brain health information and services more accessible.

Through these comprehensive and culturally sensitive initiatives, MAP is not only raising awareness about brain health and Alzheimer's disease within the Hispanic community but also fostering a more inclusive and equitable approach to healthcare and research. These efforts serve as a model for how targeted, language-specific outreach can make a meaningful impact in addressing health disparities and improving outcomes for all communities.

Disclaimer: The content in this blog is for informational and educational purposes only and should not serve as medical advice, consultation, or diagnosis. If you have a medical concern, please consult your healthcare provider or seek immediate medical treatment.